Seek grace; not perfection.
Find joy in the small victories.
Become your family’s biggest advocate and fight tirelessly.
These are just a few of the principals that we’ve come to live by since our daughter was diagnosed with a rare genetic condition last year. Since that time we’ve learned so much. Some days the challenges feel nearly impossible to overcome. But there’s so much joy to be found in the journey. And that’s why we’re sharing our story.
If you’re looking for a perfect family, you’ve come to the wrong place.
But if you’re looking for honesty, hope, laughter and acceptance, stick around! We’re excited that you’ve joined us!